Floppy: Tales of a Genetic Freak of Nature at the End of the World

Red Hen. May 2023. 280p. ISBN 9781636280974. pap. $18.95. MEMOIR
In this compelling memoir, debut author and cartoonist Graybeal writes about her life living with chronic pain and her childhood diagnosis of the rare genetic connective tissue disorder called Ehlers-Danlos syndrome. Coming to terms with her condition, she also found herself at age 10 with no treatment options, a lack of parental support from divorced parents, and the struggle to adapt and live in a world that does not accommodate her needs. The book details her time living in Canada with her wife, her wife’s own mysterious health issues, and the author learning many years later about health options that were available to help her. Throughout the book, Graybeal weaves her story by alternating back and forth between the times of her childhood and her adulthood, which builds a sense of intrigue about events that are mentioned or foreshadowed and then revisited later.
VERDICT This book is recommended for those interested in memoirs, connective tissue and cell disorders, and Ehlers-Danlos syndrome, and also for people living with disabilities.
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