Raising a Rare Girl

Piatkus. Jul. 2020. 320p. ISBN 9780525559634. $27. CHILD REARING
“Rare children” are children diagnosed with a disease that affects less than five percent of individuals. Lanier’s (The Story You Tell Yourself) daughter Fiona was diagnosed with Wolf-Hirchhorn Syndrome, a disorder that affects only one in 50,000 people. From her complicated feelings when seeing able-bodied babies to her anxiety during her subsequent pregnancy, the author chronicles the many struggles in raising a “rare girl.” Yet Lanier also shares the joys of discovering her child’s hidden love for music and propensity for clapping and her elation when Fiona learned to nod, increasing communication among family members.
VERDICT Lanier’s memoir will resonate with a wide range of readers.
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